The BRIMM infrastructure was developed and implemented. An expert meeting was organized to assess the strengths, weaknesses, opportunities, and threats of the new research infrastructure. Participating patients and GPs received feedback. The questionnaires and a dedicated feedback portal were developed in collaboration with a patient association for pelvic-related diseases, Bekkenbodem4All.
#Patient electronic health records series
Patients received a series of questionnaires on disease status, pharmacological and nonpharmacological treatments, adverse drug reactions, drug adherence, and quality of life. They were invited subsequently for participation by their general practitioner (GP), via a trusted third party. Patients with OAB were flagged weekly on the basis of diagnoses and prescriptions. BRIMM's starting point is routinely recorded general practice EHR data that are sent to the Dutch Nivel Primary Care Database weekly. To develop the Benefit, Risk, and Impact of Medication Monitor (BRIMM) infrastructure, we first performed a requirement analysis. We focused on the treatment of overactive bladder (OAB) in general practice as a use case. The aim of this study is to develop an innovative research infrastructure that combines information from EHRs with patient experiences reported in questionnaires to monitor the risks and benefits of medical treatment. However, they are limited in scope and should be complemented by information from the patient perspective. Real-world data from electronic health records (EHRs) represent a wealth of information for studying the benefits and risks of medical treatment.
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